PATIENT INVOLVEMENT

Patient Engagement

Clinnova will develop a patient & public involvement (PPI) strategy to ensure. A part of this strategy is the setup of a Patient and Public Advisory Board. This Board will be opened to patients with use case diseases and their family members as well as physicians and members of the general public.

Once implemented, this Patient and Public Advisory Board will help prepare and review information material on Clinnova targeted to patients and the general public and provide advice on the communication and engagement strategy. Moreover, this Board will provide suggestions for prioritization of research topics. In the long term, the goal is to co-create research projects together with patients, physicians and researchers.